EORTCQOL
EORTC group for research into Quality of Life
Bibliography
 

Aaronson NK, Ahmedzai S, Bullinger M, et al. for the EORTC Study Group on Quality of Life. The EORTC Core Quality of Life Questionnaire: Interim results of an international field study. In: Effect of Cancer on Quality of Life (D. Osoba, ed.), CRC Press Inc., Boca Raton, 1991, pp. 185-203.

Bjordal K, Kaasa S. Psychometric validation of the EORTC core quality of life questionnaire , 30 item version and a diagnosis specific module for head and neck cancer patients. Acta Oncol. 31: 311-321, 1992.

Aaronson NK, Ahmedzai S, Bergman B, et al., for the European Organization for Research and Treatment of Cancer QLQ-C30: A Quality-of-Life Instrument for Use in International Clinical Trials in Oncology. JNCI 85: 365-376, 1993.

Bjordal K, Kaasa S, Ahlner M, et al. Development of a head and neck cancer-specific module for use with the EORTC core quality of life questionnaire (EORTC QLQ-C30). Quality of Life Research 2: 72, 1993.

Cull A on behalf of the EORTC Quality of Life Study Group. Organization and Achievement of the EORTC Quality of Life Study Group. Quality of Life Research 2: 63, 1993.

Ringdal GI, Ringdal K. Testing the EORTC Quality of Life Questionnaire on cancer patients with heterogeneous diagnoses. Quality of Life Research 2: 129-140, 1993.

Sprangers MAG, Cull A, Bjordal K et al. The European Organization for Research and Treatment of Cancer Approach Quality of Life Assessment: Guidelines for Developing Questionnaire Modules. Quality of Life Research 2: 287-295, 1993.

Sprangers MAG, Cull A on behalf of the EORTC Quality of Life Study Group. A modular approach to QOL assessment - lines for questionnaire development. Quality of Life Research 2: 72, 1993.

Sprangers MAG, Cull A, Bjordal K et al. for the EORTC Study Group on Quality of Life. The European Organization for Research and Treatment of Cancer approach to the quality of life (QOL) assessment: Guidelines for developing questionnaire modules. Quality of Life Research 3 67-68, 1994.

Hjermstad MJ, Fossa SD, Bjordal K et al. Test/retest study of the European Organization for Research and Treatment of Cancer Core Quality-of-Life Questionnaire. J. Clin. Oncol. 13: 1249-1254, 1995.

Kaasa S, Bjordal K, Aaronson NK, et al. and the EORTC Study Group on Quality of Life. The EORTC Core Quality of Life Questionnaire (QLQ-C30): Validity and reliability when analyzed with patients treated with palliative radiotherapy. Eur. J. Cancer 31A: 2260-2263, 1995.

Osoba D, Aaronson NK, Muller M, et al. The development and psychometric validation of a brain cancer quality of life questionnaire for use in combination with general cancer specific questionnaires. Quality of Life Research 5: 1, 139-150, 1996.

Sprangers MAG, Groenvold M, Arraras JI, et al.. The European Organisation for Research and Treatment of Cancer: Breast Cancer Specific Quality of Life Questionnaire Module: First results from a three-country field study. J. Clin. Oncol. 14: 2756-2768, 1996.

Watson M, Zittoun R, Hall E, et al. A modular questionnaire for the assessment of long term quality of life in leukaemia patients: The MRC/EORTC QLQ-LEU. Quality of Life Research 5: 15-19, 1996.

Aaronson NK, Cull A, Kaasa S, et al. for the EORTC Study Group on Quality of Life. Modular approach to Quality of Life assessment in oncology: An update. In: Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd edition (B. Spilker, ed). Lippincott - Raven Publishers, Philadelphia, 1996, pp 179-189.

Kobayashi K, Takeda F, Teramukai S, et al. A cross-validation of the European Organization for Research and Treatment of Cancer QLQ-C30 (EORTC QLQ-C30) for japanese with lung cancer. Eur. J. Cancer 34: 810-815, 1998.

Sprangers MAG, Cull A, Groenvold M, et al. The European Organization for Research and Treatment of Cancer approach to developing questionnaire modules: An update and overview. EORTC Quality of Life Study Group. Qual. Life Res. 7: 291-300, 1998.

Bjordal K, Hammerlid E, Ahlner-Elmqvist M, et al. for the EORTC Quality of Life Group. Quality of life in head and neck cancer patients: Validation of the European organization for research and treatment of cancer quality of life questionnaire-H&N35. J. Clin. Oncol. 17: 1008-1019, 1999.

Fitzsimmons D, Johnson CD, George S, et al. Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer. Eur. J. Cancer 35: 939-941, 1999.

Sprangers MAG, Te Velde A, Aaronson NK. The construction and testing of the EORTC colorectal cancer-specific quality of life questionnaire module (QLQ-CR38). Eur. J. Cancer 35: 238-247, 1999.

Stead ML, Brown JM, Velikova G, et al. Development of an EORTC questionnaire module to be used in health-related quality-of-life assessment for patients with multiple myeloma. European organization for research and treatment of cancer study group on quality of life. Br. J. Haematol. 104: 605-611, 1999.

Bjordal K, De Graeff A, Fayers PM, et al. on behalf of the EORTC Quality of Life Group. A 12 country field study of the EORTC QLQ-C30 (version 3.0) and the head and neck cancer specific module (EORTC QLQ-H&N35) in head & neck patients. Eur. J. Cancer 36: 1796-1807, 2000.

De Haes J, Curran D, Young T, et al. Quality of life evaluation in oncological clinical trials - The EORTC model. The EORTC Quality of Life Group. Eur. J. Cancer 36 (7): 821-825, 2000.

Cull A. Howat S, Greimel E et al. Development of a European Organization for Research and Treatment of Cancer questionnaire module to assess the quality of life of ovarian cancer patients in clinical trials: A progress report. Eur. J. Cancer. 37 (1): 47-53, 2001.

Sprangers MAG Groenvold M, Arraras JI, et al. The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: First results from a three-country field study Classic Papers and current Comments, J. Clin. Oncol. 5 (4): 917 –929, 2001.

Vickery CW, Blazeby JM, Conroy T, et al. on behalf of the EORTC Quality of Life Group. Development of an EORTC disease-specific quality of life module for use in patients with gastric cancer. Eur. J. Cancer 37: 966-971, 2001.

Arraras JI, Arias F, Tejedor M, et al. The EORTC QLQ-C30 (version 3.0) Quality of Life questionnaire: Validation study for Spain with head and neck cancer patients. Psycho-oncology 11 (3): 249-256, 2002.

Bottomley A, Vachalec S, Bjordal K et al. on behalf of the EORTC Quality of Life Group. The development and utilisation of the European Organisation for Research and Treatment of Cancer - Quality-of-Life Group item bank. Eur. J. Cancer 38 (12), 1611-1614, 2002.

Bottomley A, Vanvoorden V, Flechtner H et al. on behalf of the EORTC Quality of Life Group and the EORTC Data Center. The challenges and achievements involved in implementing Quality of Life research in cancer clinical trials [Position Paper]. Eur. J. Cancer 39 (3): 275-285, 2002.

Fayers P, Bottomley A on behalf of the EORTC Quality of Life Group and of the Quality of Life Unit. Quality of life research within the EORTC - the EORTC QLQ-C30. Eur. J. Cancer 38 (Suppl. 4): S125-S133, 2002.

Blazeby JM, Conroy T, Hammerlid E, et al. on behalf of the EORTC Gastrointestinal and Quality of Life Groups. Clinical and psychometric validation of an EORTC questionnaire module, the EORTC QLQ-OES18, to assess quality of life in patients with oesophageal cancer. Eur J Cancer 39: 1384-1394, 2003.

Efficace F, Bottomley A, Osoba D, et al. Beyond the development of Health-Related Quality of Life (HRQOL) Measures: A Checklist for evaluation HRQOL Outcomes in Cancer Clinical Trials- Does HRQOL evaluation in prostate cancer research inform clinical decision making. J. Clin. Oncol. 21 (18): 3502-3511, 2003.

Greimel E, Bottomley A, Cull A et al. on behalf of the EORTC Quality of Life Group and the Quality of Life  Unit. An international field study of the reliability and validity of a disease-specific questionnaire module (the QLQ-OV28) in assessing the quality of life of patients with ovarian cancer. Eur J Cancer 39: 1402-1408, 2003.

Kavadas V, Blazeby JM, Conroy T, et al. on behalf of the EORTC Quality of Life Group. Development of an EORTC disease-specific quality of life questionnaire for use in patients with liver metastates from colorectal cancer. Eur J Cancer 39: 1259-1263, 2003.

Petersen MA, Groenvold M, Bjorner JB et al. Use of differential item functioning analysis to assess the equivalence of translations of a questionnaire. European Organisation for Research and Treatment of Cancer Quality of Life Group. Qual Life Res 12: 373-385, 2003.

Ramage JK, Davies AH on behalf of the EORTC Quality of Life Group. Measurement of quality of life in carcinoid/neuroendocrine tumours. Endocr Relat Cancer 10: 483-486, 2003.

Arraras JI, Wright S, Greimel E, et al. Development of a questionnaire to evaluate the information needs of cancer patients: The EORTC questionnaire. Patient Educ Couns 54: 235-241, 2004.

Bjorner JB, Petersen MA, Groenvold M et al. for the EORTC Quality of Life Group. Use of item response theory to develop a shortened version of the EORTC QLQ-C30 emotional function scale. Quality of Life Research 13: 1683-1697, 2004.

Blazeby JM, Currie E, Zee BCY et al. on behalf of the EORTC Quality of Life Group. Development of a questionnaire module to supplement the EORTC QLQ-C30 to assess quality of life in patients with hepatocellular carcinoma, the EORTC QLQ-HCC18. Eur J Cancer. 40 (16): 2439-2444, 2004.

Blazeby JM, Conroy T, Bottomley A et al. on behalf of the EORTC Gastrointestinal and Quality of Life Group. Clinical and psychometric validation of questionnaire module, the EORTC QLQ-STO22, to assess quality of life in patients with gastric cancer. Eur J Cancer 40: 2260-2268, 2004.

Brandberg Y, Damato B, Kivela T, et al. The EORTC ophthalmic oncology quality of life questionnaire module (EORTC QLQ-OPT30). Development and pre-testing (Phase I-III). EORTC Ophthalmic Oncology Task Force; EORTC Quality of Life Group. Eye 18: 283-289, 2004.

Chie WC, Yang CH, Hsu C, et al. Quality of life of lung cancer patients: Validation of the Taiwan Chinese version of the EORTC QLQ-C30 and QLQ-LC13. Quality of Life Research 13: 257-262, 2004.

Brédart A, Bottomley A, Blazeby JM et al. and on behalf of the EORTC Quality of Life Group and Quality of Life Unit. An international prospective study of the EORTC cancer in-patient satisfaction with care measure (EORTC IN-PATSAT32). Eur J Cancer 41 (14): 2120-2131, 2005.

Bottomley A, Flechtner H, Efficaca F et al. on behalf of the EORTC Data Center and Quality of Life Group. Health related quality of life outcomes in cancer trials. Eur J Cancer 41 (12): 1697-1709, 2005.

Postma TJ, Aaronson NK, Heimans JJ, et al. on behalf of the EORTC Quality of Life Group. The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: The QLQ-CIPN20. Eur J Cancer 41: 1135-1139, 2005.

Davies AHG, Larsson G, Ardill J et al. on behalf of the EORTC Quality of Life Group. Development of a disease-specific quality of life questionnaire module for patients with gastrointestinal neuroendocrine tumours. Eur J Cancer 42: 477-484, 2006.

Scott NW, Fayers PM, Bottomley A et al. on behalf of the EORTC Quality of Life Cross-Cultural Meta-Analysis Group. Comparing translations of the EORTC QLQ-C30 using differential item functioning analyses. Qual Life Res 15 (6): 1103-1115, 2006.

Greimel E, Kuljanic Vlasic K, Waldenstrom AC et al. on behalf of the EORTC Quality of Life Group. The European Organization for Research and Treatment of Cancer (EORTC) Quality-of-Life questionnaire cervical cancer module - EORTC QLQ-CX24. Cancer 107 (8): 1812-1822, 2006.
Groenvold M, Petersen MA, Aaronson NK, et al. for the EORTC Quality of Life Group. The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care. Eur J Cancer 42 (1): 55-64, 2006.

Brédart A, Coens C, Aaronson NK, Chie W-C, Efficace F, Conroy T, Blazeby JM, Hammerlid E, Costantini M, Joly F, Schraub S, Sezer O, Arraras JI, Rodary C, Costantini A, Mehlitz M, Razavi D, Bottomley A on behalf of the EORTC Quality of Life Department. Determinant of patient satisfaction in oncology settings from European and Asian countries: Preliminary results based on the EORTC IN-PATSAT32 questionnaire. Eur J Cancer 43 (2): 323-330, 2007.

Velikova G, Weis J, Hjermstad MJ, Kopp M, Morris P, Watson M, Sezer O; EORTC Quality of Life Group. The EORTC QLQ-HDC29: A supplementary module assessing the quality of life during and after high-dose chemotherapy and stem cell transplantation. Eur J. Cancer 43 (1): 87-94, 2007.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Koller M, Petersen MA, Sprangers MA; on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. The use of differential item functioning analyses to identify cultural differences in responses to the EORTC QLQ-C30. Qual Life Res 16: 115-129, 2007.

Lagergren P, Fayers P, Conroy T, Stein HJ, Sezer O, Hardwick R, Hammerlid E, Bottomley A, Van Cutsem E, Blazeby JM; European Organisation for Research Treatment of Cancer Gastrointestinal and Quality of Life Groups. Clinical and psychometric validation of a questionnaire module, the EORTC QLQ-OG25, to assess health-related quality of life in patients with cancer of the esophagus, the esophago-gastric junction and the stomach. Eur J Cancer 43 (14): 2066-2073, 2007.

Huang CC, Lien HH, Sung YC, Liu HT, Chie WC. Quality of life of patients with gastric cancer in Taiwan: Validation and clinical application of the Taiwan Chinese version of the EORTC QLQ-C30 and EORTC QLQSTO22. Psycho-Oncology 16: 945–949, 2007.

Van Andel G, Bottomley A, Fossa S, Efficace F, Coens C, Guerif S, Kynaston, H, Gontero P, Thalmann G, Akdas A, D’haese S, Aaronson NK on behalf of the EORTC Genito-Urinary Tract Cancer Group and the EORTC Quality of Life Group. An international field study of the EORTC QLQ-PR25: A questionnaire for assessing the health-related quality of life of patients with prostate cancer. Eur J Cancer 44 (16): 2418-2424, 2008.

Cankurtaran ES, Ozalp E, Soygur H, Ozer S, Akbiyik DI, Bottomley A. Understanding the reliability and validity of the EORTC QLQ-C30 in Turkish cancer patients. Eur J Cancer Care 17 (1): 98-104, 2008.

Cocks K, King MT, Velikova G, Fayers PM, Brown JM. Quality, interpretation and presentation of European Organisation for Research and Treatment of Cancer quality of life questionnaire core 30 data in randomised controlled trials. EJC 44: 1793–1798, 2008.

Pais-Ribeiro J, Pinto C, Santos C. Validation study of the Portuguese Version of the QLQ-C30 V3. Psicologia, Saúde & Doenças 9(1):89-102, 2008.

Blazeby JM, Fayers P, Conroy T, Sezer O, Ramage J, Rees M on behalf of the European Organization for Research Treatment of Cancer (EORTC) Quality of Life Group. Validation of the European Organization for Research and Treatment of Cancer QLQ-LMC21 questionnaire for assessment of patient-reported outcomes during treatment of colorectal liver metastases. Br J Surg. 96 (3): 291-298, 2009.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MAG on behalf of the EORTC Quality of Life Group and the Quality of Life Cross-Cultural Meta-Analysis Group. A simulation study provided sample size guidance for differential item functioning (DIF) studies using short scales. J Clin Epidemiol 62 (3): 288-295, 2009.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MAG on beholf of the EORTC Quality of Life Group and the Quality of Life Cross-Cultural Meta-Analysis Group. Differential item functioning (DIF) in the EORTC QLQ-C30: a comparison of baseline, on-treatment and off-treatment data. Qual Life Res. 2009 Feb 27.

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Manuals

Cull A, Sprangers MAG, Bjordal K, Aaronson NK on behalf of the EORTC Quality of Life Study Group. Translation Procedure. EORTC Monograph, 1998, 26 pp.

Fayers P, Weeden S, Curran D on behalf of the EORTC Quality of Life Study Group. EORTC QLQ-C30 Reference Values. EORTC Monograph, 1998, 157 pp.

Sprangers MAG, Cull A, Groenvold M on behalf of the EORTC Quality of Life Study Group. Guidelines for Developing Questionnaire Modules. EORTC Monograph, 1998, 34 pp.

Fayers P, Aaronson NK, Bjordal K, Curran D, Groenvold M on behalf of the EORTC Quality of Life Study Group. EORTC QLQ-C30 Scoring Manual: 2nd Edition" 1999, ISBN 2-930064-16-1, 78 pp.

Young T, De Haes H, Curran D, Fayers P, Brandberg Y, Blazeby JM, Bjordal K, Aaronson NK, Watson M, Maher J, Kiebert W on behalf of the EORTC Quality of Life Study Group. Guidelines for assessing quality of life in EORTC clinical trials. 1999, ISBN 2-930064-17-X, 41 pp.
Blazeby JM, Cull A, Groenvold M and Bottomley A. Guidelines for developing Quality of Life Questionnaires (Second Edition). EORTC Quality of Life Group, Brussels, 2001, 34 pp.

Fayers P, Aaronson NK, Bjordal K, Curran D and Groenvold M on behalf of the EORTC Quality of Life Study Group. EORTC QLQ-C30 Scoring Manual (Third edition). Brussels, EORTC Quality of Life Group, 2001, 86 pp.

Vachalec S, Bjordal K, Bottomley A, Blazeby JM, Flechtner H and Ruyskart P. EORTC Item Bank Guidelines. EORTC Quality of Life Group Brussels, 2001, 20 pp.

Blazeby JM, Sprangers MAG, Cull A, Groenvold M, Bottomley A on behalf of the EORTC Quality of Life Group. EORTC Quality of Life Group Guidelines for Developing Questionnaire Modules. EORTC Quality of Life Group Publication, Brussels, 2-930064-24-2, August 2002.

Cull A, Sprangers MAG, Bjordal K, Aaronson NK, West K and Bottomley A on behalf of the EORTC Quality of Life Group. EORTC Quality of Life Group Translation Procedure. EORTC Quality of Life Group Publication, Brussels, 2-930064-28-5, April 2002.

Young T, De Haes H, Curran D, Fayers P, Brandberg Y, Vanvoorden V, Bottomley A on behalf of the EORTC Quality of Life Group. EORTC Guidelines for assessing quality of life in clinical trials. EORTC Quality of Life Group Publication, Brussels, 2-930064-27-7, March 2002.

Bottomley A, Sanderson Scott S, Vanvoorden V, Fayers P and Greimel E on behalf of the EORTC Quality of Life Unit and the EORTC Quality of Life Group. The EORTC QLQ-C30 manuals, reference values and bibliography. CD-ROM, Copyright © 2003 EORTC Quality of Life Group, Brussels, 2003.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MAG on behalf of the EORTC Quality of Life Group. EORTC QLQ-C30 Reference Values. EORTC Quality of Life Group Publications, Brussels, 2008.

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