The Item Library is an online platform comprised of more than 900 individual items from over 60 EORTC questionnaires, some of which have been translated into up to 110 languages. Its aim is to not only facilitate the development and use of existing EORTC instruments but also to provide users with the possibilty to create custom-made ad hoc item lists. It is a key tool in the EORTC Quality of Life Group’s new strategy, which aims to increase content validity in patient-reported outcomes research by allowing researchers the flexibility to supplement existing validated EORTC questionnaires and modules with ad hoc item lists.
While static instruments like the QLQ C-30 and disease-specific modules have been extensively validated and tested in different populations, and allow for measurement of global as well as disease-specific aspects of quality of life, they may not always be sufficient to investigate certain research questions. In a rapidly evolving field in which new treatments are constantly being introduced and investigated, static questionnaires may not always be able to capture the range of possible symptoms and adverse events under investigation in clinical trials. By creating custom-made item lists, Item Library users are able to select specific symptoms, events, and types of functioning which are relevant to their research and cover a broad range of areas (e.g., physical symptoms, emotional functioning, cognitive functioning, communication, satisfaction with care, and many more).
Users are able to browse through existing measures (including other custom-made item lists) and use a variety of keywords to search for items. Search results can then be filtered according to domain, response, and time scales, along with several other options. Information on available translations, recommended wording, and similar items further assist users in building their custom-made lists. In addition to the implementation of ad hoc item lists, the Item Library can also assist with the following:
* Storing information about the development of module items, including the wording and translations of the various
items and subscales
* Comparing items and subscales in new modules and item lists with those that are already approved
* Acting as a data bank
By making the custom-made item lists available to all registered users, the Item Library promotes accessibility and collaboration across the research community, with the goal of creating tools that support the advancement of patient reported outcomes measures in oncology.
The Item Library can be accessed here
Questions about Item Library use and access can be sent here