QLG Publications

2017

 

Giesinger JM, Aaronson NK, Arraras JI, Efficace F, Groenvold M, Kieffer JM, Loth FLC, Petersen MA, Ramage J, Tomaszewski KA, Young T, Holzner B; EORTC Quality of Life Group. A cross-cultural convergent parallel mixed methods study of what makes a cancer-related symptom or functional health problem clinically important. Psychooncology. 2017 Aug 30. doi: 10.1002/pon.4548. [Epub ahead of print]

 

Singer S, Jordan S, Locati LD, Pinto M, Tomaszewska IM, Araújo C, Hammerlid E, Vidhubala E, Husson O, Kiyota N, Brannan C, Salem D, Gamper EM, Arraras JI, Ioannidis G, Andry G, Inhestern J, Grégoire V, Licitra L; EORTC Quality of Life Group, the EORTC Head and Neck Cancer Group, and the EORTC Endocrine Task Force. The EORTC module for quality of life in patients with thyroid cancer: phase III. Endocr Relat Cancer. 2017; Apr;24(4):197-207. doi: 10.1530/ERC-16-0530.

 

Arraras JI, Wintner LM, Sztankay M, Tomaszewski KA, Hofmeister D, Costantini A, Bredart A, Young T, Kuljanic K, Tomaszewska IM, Kontogianni M, Chie WC, Kulis D, Greimel E,  Zarandona U. La comunicación entre el paciente oncológico y los profesionales. El Cuestionario de Comunicación de la EORTC. Psicooncología. 2017; 14(1): 107-120. DOI: dx.doi.org/10.5209/PSIC.55815

 

Bottomley A, Bjordal K. Making advances in Quality of Life Studies in Head and Neck. Int J Radiat Oncol Biol Phys. 2017 Mar 15;97(4): 659-661. doi: 10.1016/j.ijrobp.2016.11.051.

 

Arraras JI, Wintner LM, Sztankay M, Tomaszewski K, Hofmeister D, Costantini A, Bredart A, Young T, Kuljanic K, Tomaszewska IM, Kotogianni M, Chie WC, Kulis D, Greimel E; conducted on behalf of the EORTC Quality of Life Group. EORTC QLQ-COMU26: A questionnaire for the assessment of communication between patients and professionals. Phase III of the module development in ten coutries. Supportive Care Cancer. 2017 May; 25(5): 1485-1494. doi: 10.1007/s00520-016-3536-0. Epub 2016

 

Sodergren S, Husson O, Robinson J, Rohde G, Tomaszewska I, Vivat B, Dyar R, Darlington AS.  On behalf of the EORTC Quality of Life Group. Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer.  Qual Life Res. 2017; Mar1, 1-14. DOI: 10.1007/s11136-017-1520-x

 

Wheelwright SJ, Hopkinson JB, Darlington AS, Fitzsimmons DF, Fayers P, Balstad TR, Bredart A, Hammerlid E, Kaasa S, Nicolatou-Galitis O, Pinto M, Schmidt H, Solheim TS, Strasser F, Tomaszewska IM, Johnson CD; EORTC Quality of Life Group. Development of the EORTC QLQ-CAX24, A Questionnaire for Cancer Patients With Cachexia. J Pain Symptom Manage. 2017 Feb;53(2):232-242. doi: 10.1016/j.jpainsymman.2016.09.010. Epub 2016 Nov 1.

 

Weis J,Tomaszewski K, Hammerlid E, Arraras J.I., Conroy T, Lanceley A, Schmidt H, Wirtz M, Singer S, Pinto M, Alm El-Din MA, Compter I, Holzner B, Hofmeister D, Chie WC, Czeladzki M, Harle A, Jones L, Ritter S, Flechtner H-H, Bottomley A; International Psychometric Validation of an EORTC Quality of Life Module Measuring Cancer Related Fatigue (EORTC QLQ-FA12). J Natl Cancer Inst. 2017 Feb 7. 109(5). doi: 10.1093/jnci/djw273

 

 

2016

 

Singer S, Husson O, Tomaszewska IM, Locati LD, Kiyota N, Scheidemann-Wesp U, Hofmeister D, Winterbotham M, Brannan C, Araújo C, Gamper EM, Kulis D, Rimmele H, Andry G, Licitra L; on behalf of the EORTC Quality of Life Group, the EORTC Head and Neck Cancer Group, and the EORTC Endocrine Task Force. Quality-of-Life Priorities in Patients with Thyroid Cancer: A Multinational European Organisation for Research and Treatment of Cancer Phase I Study. Thyroid. 2016 Nov;26(11):1605-1613. Epub 2016 Oct 12.

 

Kaupp-Roberts SD, Yadegarfar G, Friend E, O'Donnell CM, Valle JW, Byrne C, Bahar I, Finch-Jones M, Gillmore R, Johnson CV, Pereira SP, Wiggers JK, Pinto M, Al-Sarireh B, Ramage JK; on behalf of the EORTC Quality of Life Group. Validation of the EORTC QLQ-BIL21 questionnaire for measuring quality of life in patients with cholangiocarcinoma and cancer of the gallbladder. British J Cancer. 2016 Oct 25; 115, 1032-1038. doi: 10.1038/bjc.2016.284

 

Dirven L, Taphoorn MJB, Groenvold M, Habets EJJ, Aaronson NK, Conroy T, Reijneveld JC, Young T, Petersen MA, on behalf of the EORTC Quality of Life Group. Development of an item bank for computerized adaptive testing of self-reporterd cognitive difficult in cancer patients. Neuro Oncol Pract (in press). 

 

Wintner LM, Sztankay M, Aaronson N, Bottomley A, Giesinger JM, Groenvold M, Petersen MA, van de Poll-Franse L, Velikova G, Verdonck-de Leeuw I, Holzner B; EORTC Quality of Life Group. The use of EORTC measures in daily clinical practice-A synopsis of a newly developed manual. Eur J Cancer. 2016 Oct 6;68:73-81. doi: 10.1016/j.ejca.2016.08.024. [Epub ahead of print]

 

Wheelwright SJ, Hopkinson JB, Darlington AS, Fitzsimmons DF, Fayers P, Balstad TR, Bredart A, Hammerlid E, Kaasa S, Nicolatou-Galitis O, Pinto M, Schmidt H, Solheim TS, Strasser F, Tomaszewska IM, Johnson CD; EORTC Quality of Life Group.Development of the EORTC QLQ-CAX24, a questionnaire for cancer patients with cachexia. J Pain Symptom Manage. 2016 Oct 31. pii: S0885-3924(16)30765-5. doi: 10.1016/j.jpainsymman.2016.09.010. [Epub ahead of print]

 

Hjermstad MJ, Bergenmar M, Bjordal K, Fisher SE, Hofmeister D, Montel S, Nicolatou-Galitis O, Pinto M, Raber-Durlacher J, Singer S, Tomaszewska IM, Tomaszewski KA, Verdonck-de Leeuw I, Yarom N, Winstanley JB, Herlofson BB; EORTC QoL Group. International field testing of the psychometric properties of an EORTC quality of life module for oral health: the EORTC QLQ-OH15. Support Care Cancer. 2016 Sep;24(9):3915-24. doi: 10.1007/s00520-016-3216-0. PMID:27113466

 

Ghislain I, Zikos E, Coens C, Quinten C, Balta V, Tryfonidis K, Piccart M, Zardavas D, Nagele E, Bjelic-Radisic V, Cardoso F, Sprangers MA, Velikova G, Bottomley A; European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group; Breast Cancer Group; EORTC Headquarters. Health-related quality of life in locally advanced and metastatic breast cancer: methodological and clinical issues in randomised controlled trials. Lancet Oncol. 2016 Jul;17(7):e294-304. doi: 10.1016/S1470-2045(16)30099-7.

 

Sodergren SC, Copson E, White A, Efficace F, Sprangers M, Fitzsimmons D, Bottomley A, Johnson CD. Systematic Review of the Side Effects Associated With Anti-HER2-Targeted Therapies Used in the Treatment of Breast Cancer, on Behalf of the EORTC Quality of Life Group. Target Oncol. 2016 Jun; 11(3): 277-92. doi: 10.1007/s11523-015-0409-2.

 

Gamper EM, Petersen MA, Aaronson N, Costantini A, Giesinger JM, Holzner B, Kemmler G, Oberguggenberger A, Singer S, Young T, Groenvold M; EORTC Quality of Life Group. Development of an item bank for the EORTC Role Functioning Computer Adaptive Test (EORTC RF-CAT). Health Qual Life Outcomes. 2016 May 6;14:72. doi: 10.1186/s12955-016-0475-x.

 

Brédart A, Beaudeau A, Young T, De Alberquerque Melo HM, Arraras JI, Friend L, Schmidt H, Tomaszewski KA, Bergenmar M, Costantini A, Marchal F, Tomaszewska IM, Vassiliou V, Chie WC, Hureaux J, Conroy T, Ramage J, Bonnetain F, Kulis D, Aaronson NK, EORTC Quality of Life Group. The European organization for research and treatment of cancer — satisfaction with cancer care questionnaire: revision and extended application development. Psychooncology. 13 April 2016.  doi: 10.1002/pon.4127 

 

Chie WC, Blazeby JM, Hsiao CF, Chiu HC, Poon RT, Mikoshiba N, Al-Kadhim G, Heaton N, Calara J, Collins P, Caddick K, Costantini A, Vilgrain V; Chieh CHIANG, on behalf of the EORTC QUALITY OF LIFE GROUP. Differences in health-relatedquality of life between European and Asian patients with hepatocellular carcinoma. Asia Pac J Clin Oncol. 2016 Apr 1. doi: 10.1111/ajco.12464. [Epub ahead of print]

 

Kulis D, Bottomley A, Velikova G, Greimel E, Koller M, on behalg of the EORTC Quality of Life Group. EORTC Quality of Life Group. Translation Procedure. 4th ed. Brussels, 2016.

 

Petersen MA, Gamper EM, Costantini A, Giesinger JM, Holzner B, Johnson C, Sztankay M, Young T, Groenvold M; EORTC Quality of Life Group. An emotional functioning item bank of 24 items for computerized adaptive testing (CAT) was established. J Clin Epidemiol. 2016 Feb; 70:90-100. doi: 10.1016/j.jclinepi.2015.09.002. Epub 2015 Sep 9

 

Giesinger JM, Kieffer JM, Fayers PM, Groenvold M, Petersen MA, Scott NW, Sprangers MA, Velikova G, Aaronson NK; EORTC Quality of Life Group. Replication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust. J Clin Epidemiol. 2016 Jan; 69:79-88. doi: 10.1016/j.jclinepi.2015.08.007.

 

Petersen M, Aaronson NK, Chie WC, Conroy T, Costantini A, Hammerlid E, Mjermstad MJ, Kaasa S, Loge JH, Velikova G, Young T, Groenvold M. Development of an item bank for computerized adaptive test (CAT) measurement of pain. Qual Life Res. 2016; 25(1), 1-11. doi: 10.1007/s11136-015-1068-5. Epub 2015 Aug 13.

 

2015

 

Efficace F, Fayers P, Pusic A, Cemal Y, Yanagawa J, Jacobs M, la Sala A, Cafaro V, Whale K, Rees J, Blazeby J; On behalf of EORTC Quality of Life Group.  Quality of patient-reported outcome reporting across cancer randomized controlled trials according to the CONSORT patient-reported outcome extension: A pooled analysis of 557 Trials. Cancer. 2015 ;  2015;121(18):3335-42. doi: 10.1002/cncr.29489. Epub 2015 Jun 16.

 

Singer S, Araújo C, Arraras JI, Baumann I, Boehm A, Brokstad Herlofson B, Castro Silva J, Chie WC, Fisher S, Guntinas-Lichius O, Hammerlid E, Elisa Irarrázaval M, Jensen Hjermstad M, Jensen K, Kiyota N, Licitra L, Nicolatou-Galitis O, Pinto M, Santos M, Schmalz C, Sherman AC, Tomaszewska IM, Verdonck de Leeuw I, Yarom N, Zotti P, Hofmeister D; on behalf of the EORTC Quality of Life and the EORTC Head and Neck Cancer Groups. (2015) Measuring quality of life in patients with head and neck cancer: Update of the EORTC QLQ-H&N Module, Phase III. Head Neck. doi: 10.1002/hed.23762. [Epub ahead of print]

 

Koller M, Warncke S, Hjermstad MJ, Arraras J, Pompili C, Harle A, Johnson CD, Chie WC, Schulz C, Zeman F, van Meerbeeck JP, Kuliś D, Bottomley A; European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group and the EORTC Lung Cancer Group. Use of the lung cancer-specific Quality of Life Questionnaire EORTC QLQ-LC13 in clinical trials: A systematic review of the literature 20 years after its development.  Cancer. 2015 Oct 9. doi: 10.1002/cncr.29682. [Epub ahead of print]

 

Giesinger JM, Kieffer JM, Fayers PM, Groenvold M, Petersen MA, Scott NW, Sprangers MA, Velikova G, Aaronson NK; EORTC Quality of Life Group. Replication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust. J Clin Epidemiol. 2015 Sep 27. pii: S0895-4356(15)00383-2. doi: 10.1016/j.jclinepi.2015.08.007. [Epub ahead of print]

 

Sodergren SC, Vassiliou V, Dennis K, Tomaszewski KA, Gilbert A, Glynne-Jones R, Nugent K, Sebag-Montefiore D, Johnson CD; EORTC Quality of Life Group. Systematic review of the quality of life issues associated with anal cancer and its treatment with radiochemotherapy. Support Care Cancer. 2015 Dec;23(12):3613-23. doi: 10.1007/s00520-015-2879-2. Epub 2015 Aug 20.

 

Efficace F, Rees J, Fayers P, Pusic A, Taphoorn M, Greimel E, Reijneveld J, Whale K, Blazeby J; European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Group. Overcoming barriers to the implementation of patient-reported outcomes in cancer clinical trials: the PROMOTION Registry. Health Qual Life Outcomes. 2014 Jun 6;12:86. doi: 10.1186/1477-7525-12-86.

 

Halkett G, Aoun S, Hayne D, Lund JA, Gruen A, Villa J, Livi L, Arcangeli S, Velikova G, Spry N; EORTC Quality of Life Group. EORTC radiation proctitis-specific quality of life module - pretesting in four European countries. Radiother Oncol. 2010 Nov;97(2):294-300. doi: 10.1016/j.radonc.2010.04.001. Epub 2010 May 4.

 

Winstanley JB, Young TE, Boyle FM, Bergenmar M, Bottomley A, Burmeister B, Campana LG, Garioch JJ, King M, Nikolic DV, van de Poll-Franse LV, Saw R, Thompson JF, White EG; European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group. Cross-cultural development of a quality-of-life measure for patients with melanoma: phase 3 testing of an EORTC Melanoma Module. Melanoma Res. 2015 Feb;25(1):47-58. doi: 10.1097

 

Brédart A, Kop JL, Efficace F, Beaudeau A, Brito T, Dolbeault S, Aaronson N; EORTC Quality of Life Group. Quality of care in the oncology outpatient setting from patients' perspective: a systematic review of questionnaires' content and psychometric performance. Psychooncology. 2015 Apr;24(4):382-94. doi: 0.1002/pon.3661. Epub 2014 Sep 5.

 

Arraras JI, Kuljanic K, Sztankay M, Wintner LM, Costantini A, Chie WC, Liavaag AH, Greimel E, Bredart A, Arnott M, Young T, Koller M. Initial phases in the development of a European Organisation for Research and Treatment of Cancer communication-specific module. Psychooncology. 2015 Feb;24(2):236-40.

 

Zikos E, Coens C, Bottomley A. Health-related quality of life research in EORTC cancer clinical trials: an emphasis on quality. Belg J Med Oncol 2015; 9(1):11-15.

 

Nagele E, Den Oudsten B, Greimel E, on behalf of the EORTC Quality of Life Group. How to evaluate sexual health in cancer patients: development of the EORTC sexual health questionnaire for cancer patients. Translational Andrology and Urology. 4(2), 95-102(2015)

 

2014

 

Sodergren SC, White A, Efficace F, Sprangers M, Fitzsimmons D, Bottomley A, Johnson CD.Systematic review of the side effects associated with tyrosine kinase inhibitors used in the treatment of gastrointestinal stromal tumours on behalf of the EORTC Quality of Life Group. Crit Rev Oncol Hematol. 2014 Jul;91(1):35-46. doi: 10.1016/j.critrevonc.2014.01.002. Epub 2014 Jan 17.

 

Thamsborg LH, Petersen MA, Aaronson NK, Chie WC, Costantini A, Holzner B, Leeuw IM, YoungT, Groenvold M; on behalf of the EORTC Quality of Life Group. Development of a lack of appetite item bank for computer-adaptive testing (CAT). Support Care Cancer. 2014 Nov 14. PMID: 25394710

 

Efficace F, Feuerstein M, Fayers P, Cafaro V, Eastham J, Pusic A, Blazeby J; EORTC Quality of Life Group (Patient Reported Outcome Measurements Over Time In ONcology-PROMOTION Project). Patient-reported Outcomes in Randomised Controlled Trials of Prostate Cancer: Methodological Quality and Impact on Clinical Decision Making. Eur Urol. 2014 Sep; 66(3):416-427. doi: 10.1016/j.eururo.2013.10.017. PMID: 24210091

 

Bottomley A, Tridello G, Coens C, Rolland F, Tesselaar ME, Leemans CR, Hupperets P, Licitra L, Vermorken JB, Van Den Weyngaert D, Truc G, Barillot I, Lefebvre JL. An international phase 3 trial in head and neck cancer: quality of life and symptom results: EORTC 24954 on behalf of the EORTC Head and Neck and the EORTC Radiation Oncology Group.  2014 Feb 1;120(3):390-8. Cancer. doi: 10.1002/cncr.28392.

 

Gamper EM, Groenvold M, Petersen MA, Young T, Costantini A, Aaronson N, Giesinger JM, Meraner V, Kemmler G, Holzner B; EORTC Quality of Life Group. The EORTC emotional functioning computerized adaptive test: phases I-III of a cross-cultural item bank development. 2014 Apr;23(4):397-403. Psychooncology.  doi: 10.1002/pon.3427.

 

Huebner J, Rosé C, Geissler J, Gleiter CH, Prott FJ, Muenstedt K, Micke O, Muecke R, Buentzel J, Bottomley A, Hofheinz RD. Integrating cancer patients' perspectives into treatment decisions and treatment evaluation using patient-reported outcomes--a concept paper. 2014 Mar;23(2):173-9. Eur J Cancer Care (Engl). 

 

Efficace F, Jacobs M, Pusic A, Greimel E, Piciocchi A, Kieffer JM, Gilbert A, Fayers P, Blazeby J; EORTC Quality of Life Group (Patient Reported Outcome Measurements Over Time In ONcology-PROMOTION Registry). Patient-reported outcomes in randomised controlled trials of gynaecological cancers: Investigating methodological quality and impact on clinical decision-making. Eur J Cancer.  2014 May 10. pii: S0959-8049(14)00590-5. doi: 10.1016/j.ejca.2014.04.005.

 

Winters ZE1, Balta V, Thomson HJ, Brandberg Y, Oberguggenberger A, Sinove Y, Unukovych D, Nava M, Sandelin K, Johansson H; European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Group, Dobbeleir J, Blondeel P, Bruno N, Catanuto G, Llewellyn-Bennett R. Phase III development of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire module for women undergoing breast reconstruction. Br J Surg. March 2014. doi: 10.1002/bjs.9397.

 

Efficace F, Rees J, Fayers P, Pusic A, Taphoorn M, Greimel E, Reijneveld J, Whale K, Blazeby J.  Overcoming barriers to the implementation of patient-reported outcomes in cancer clinical trials: the PROMOTION Registry. Health and Quality of Life Outcomes. 2014. doi:10.1186/1477-7525-12-86

 

Linda Dirven, Martin J.B. Taphoorn, Jaap C. Reijneveld, Jane Blazeby, Marc Jacobs, Andrea Pusic, Edoardo La Sala, Roger Stupp, Peter Fayers, Fabio Efficace. On behalf of EORTC Quality of Life Group (PROMOTION Registry). The level of patient-reported outcome reporting in randomized controlled trials of brain tumour patients. Eur J Cancer. 2014 Sep; 50(14):2432-2448. doi: 10.1016/j.ejca.2014.06.016.

 

Singer S, Araújo C, Arraras JI, Baumann I, Boehm A, Brokstad Herlofson B, Castro Silva J, Chie WC, Fisher S, Guntinas-Lichius O, Hammerlid E, Elisa Irarrázaval M, Jensen Hjermstad M, Jensen K, Kiyota N, Licitra L, Nicolatou-Galitis O, Pinto M, Santos M, Schmalz C, Sherman AC, Tomaszewska IM, Verdonck de Leeuw I, Yarom N, Zotti P, Hofmeister D; on behalf of the EORTC Quality of Life and the EORTC Head and Neck Cancer Groups. Measuring quality of life in patients with head and neck cancer: Update of the EORTC QLQ-H&N Module, Phase III. Head Neck. 2014 May 15. doi: 10.1002/hed.23762

 

Brédart A, Kop JL, Efficace F, Beaudeau A, Brito T, Dolbeault S, Aaronson N; for the EORTC Quality of Life Group. Quality of care in the oncology outpatient setting from patients' perspective: a systematic review of questionnaires' content and psychometric performance. Psychooncology. 2014 Sep 5. doi: 10.1002/pon.3661.

 

S J Wheelwright,  A-S Darlington,  J B Hopkinson,  D Fitzsimmons,  A White,  C D Johnson.  A systematic review to establish health-related quality-of-life domains for intervention targets in cancer cachexia. BMJ Support Palliat Care bmjspcare-2014-000680Published Online First: 18 June 2014. doi:10.1136/bmjspcare-2014-000680.

 

2013

 

Greimel E, Kristensen GB, van der Burg ME, Coronado P, Rustin G, Sanchez del Rio A, Reed NS, Nordal RR, Coens C, Vergote I, European Organization for Research and Treatment of Cancer — Gynaecological Cancer Group and the NCIC Clinical Trials Group. Quality of life of advanced ovarian cancer patients in the randomized phase III study comparing primary debulking surgery versus neo-adjuvant chemotherapy. Gynecol Oncol. 2013 Nov;1 31(2):437-44. doi: 10.1016

 

Efficace F, Feuerstein M, Fayers P, Cafaro V, Eastham J, Pusic A, Blazeby J. EORTC Quality of Life Group (Patient Reported Outcome Measurements Over Time In ONcology-PROMOTION Project). Patient-Reported Outcomes in Randomized Controlled Trials of Prostate Cancer: Methodological Quality and Impact on Clinical Decision-Making. European Urology,  2013 Oct 30. pii: S0302-2838(13)01090-7. doi: 10.1016

 

Singer S, Arraras JI, Chie WC, Fisher SE, Galalae R, Hammerlid E, Nicolatou-Galitis O, Schmalz C, Verdonck-de Leeuw I, Gamper E, Keszte J, Hofmeister D. Performance of the EORTC questionnaire for the assessment of quality of life in head and neck cancer patients EORTC QLQ-H&N35: a methodological review. Qual Life Res. 2013 Oct;22(8):1927-41. doi: 10.1007/s11136-012-0325-1

 

Wheelwright S, Darlington AS, Hopkinson JB, Fitzsimmons D, White A, Johnson CD. A systematic review of health-related quality of life instruments in patients with cancer cachexia. Support Care Cancer. 2013 Sep;21(9):2625-36

 

Singer S, Arraras JI, Baumann I, Boehm A, Chie WC, Galalae R, Langendijk JA, Guntinas–Lichius O, Hammerlid E, Pinto M, Nicolatou–Galitis O, Schmalz C, Sen M, Sherman AC, Spiegel K, Verdonck–de Leeuw I, Yarom N, Zotti P,  Hofmeister D, EORTC Quality of Life Group, EORTC Head and Neck Cancer Group. Quality of life in patients with head and neck cancer receiving targeted or multimodal therapy --- Update of the EORTC QLQ-H&N35, Phase I. Head Neck. 2013 Sep; 35(9):1331-8. doi: 10.1002/hed.23127

 

Efficace F, Baccarani M, Breccia M, Saussele S, Abel G, Caocci G, Guilhot F, Cocks K, Naeem A, Sprangers M, Oerlemans S, Chie W, Castagnetti F, Bombaci F, Sharf G, Cardoni A, Noens L, Pallua S, Salvucci M, Nicolatou-Galitis O, Rosti G, Mandelli F. International development of an EORTC questionnaire for assessing health-related quality of life in chronic myeloid leukemia patients: the EORTC QLQ-CML24. Qual Life Res. 2013 Sep 13

 

Cocks K, Velikova G, King MT, Fayers PM, Brown JM. Can individual patients assess differences in quality of life between groups of patients? Eur J Cancer Care (Engl). 2013 Aug 27. doi: 10.1111/ecc.12113. [Epub ahead of print] PubMed PMID: 24033609.

 

S Wheelwright,  A-S Darlington, D Fitzsimmons, P Fayers, J I Arraras, F Bonnetain, E Brain, A Bredart, W-C Chie, J Giesinger, E Hammerlid, S J O’Connor, S Oerlemans, A Pallis, M Reed, N Singhal, V Vassiliou, T Young, C Johnson, on behalf of the EORTC Quality of Life Group. International validation of the EORTC QLQ-ELD14 questionnaire for assessment of health-related quality of life elderly patients with cancer. Br J Cancer. 2013 Aug 20;109(4):852-8. doi: 10.1038/bjc.2013.407.

 

Vivat B, Young T, Efficace F, Sigurđadóttir V, Arraras JI, Åsgeirsdóttir GH, Brédart A, Costantini A, Kobayashi K, Singer S; EORTC Quality of Life Group. Cross-cultural development of the EORTC QLQ-SWB36: a stand-alone measure of spiritual wellbeing for palliative care patients with cancer. 2013 May;27(5):457-69. Palliat Med. doi: 10.1177/0269216312451950.

 

Lucette A, Brédart A, Vivat B, Young T. Pilot-testing the French version of a provisional European Organisation for Research and Treatment of Cancer (EORTC) Measure of spiritual well-being for people receiving palliative care for cancer. Eur J Cancer Care (Engl). 2013 Jul 25. doi: 10.1111/ecc.12107.

 

Wheelwright S, Darlington AS, Fitzsimmons D, Fayers P, Arraras JI, Bonnetain F, Brain E, Bredart A, Chie WC, Giesinger J, Hammerlid E, O'Connor SJ, Oerlemans S, Pallis A, Reed M, Singhal N, Vassiliou V, Young T,  Johnson CD. International validation of the EORTC QLQ-ELD14 questionnaire for assessment of health-related quality of life elderly patients with cancer. Br J Cancer advance online publication, July 18, 2013; doi:10.1038/bjc.2013.407

 

Petersen, M. Aa. & Groenvold, M. (2013). Development of computerized adaptive testing (CAT) for the EORTC QLQ-C30. MAPI PRO Newsletter, Spring 2013.

 

Lavoie Smith EM, Barton DL, Qin R, Steen PD, Aaronson NK, Loprinzi CL. Assessing patient-reported peripheral neuropathy: the reliability and validity of the European Organization for Research and Treatment of Cancer QLQ-CIPN20 Questionnaire. Qual Life Res 2013 Mar 30 [Epub ahead of press] Ann Oncol. 2013 Feb;24(2):454-62. doi: 10.1093/annonc/mds329. Epub 2012 Aug 21.

 

Petersen MA, Aaronson NK, Arraras JI, Chie WC, Conroy T, Costantini A, Giesinger JM, Holzner B, King MT, Singer S, Velikova G, Verdonck-de Leeuw IM, Young T, Groenvold M; EORTC Quality of Life Group. The EORTC computer-adaptive tests measuring physical functioning and fatigue exhibited high levels of measurement precision and efficiency. J Clin Epidemiol. 2013 Mar;66(3):330-9. doi: 10.1016/j.jclinepi.2012.09.010. PubMed PMID: 23347855.

 

Thomson HJ, Winters ZE, Brandberg Y, Didier F, Blazeby JM, Mills J. The early development phases of a European Organisation for Research and Treatment of Cancer (EORTC) module to assess patient reported outcomes (PROs) in women undergoing breast reconstruction. Eur J Cancer.  2013 Mar; 49(5):1018-26. doi: 10.1016/j.ejca.2012.09.021.

 

Arraras JI, Greimel E, Chie WC, Sezer O, Bergenmar M, Costantini A, Young T, Vlasic KK, Velikova G; European Organisation for Research and Treatment of Cancer Quality of Life Group. Cross-cultural differences in information disclosure evaluated through the EORTC questionnaires. Psychooncology. 2013 Feb;22(2):268-75. doi: 10.1002/pon.2088. Epub 2011 Nov 3. PubMed PMID: 22052786

 

Cavaletti G, Comblath DR, Merkies IS, Postma TJ et al. The chemotherapy-induced peripheral neuropathy outcome measures standardization study: from consensus to the first validity and reliability findings. Ann Oncol 2013 Feb; 24:454-62 2013.

 

Singer S, Engelberg PM, Weißflog G, Kuhnt S, Ernst J. Construct validity of the EORTC quality of life questionnaire information module. Qual Life Res. 2013 Feb;22(1):123-9. doi: 10.1007/s11136-012-0114-x

 

Chmielowska K, Tomaszewski KA, Pogrzebielski A, Brandberg Y, Romanowska-Dixon B. Translation and validation of the Polish version of the EORTC QLQ-OPT30 module for the assessment of health-related quality of life in patients with uveal melanoma. Eur J Cancer Care (Engl). 2013; 22: 88-96.

 

Petersen, M. Aa., Giesinger, J. M., Holzner, B., Arraras, J. I., Conroy, T., Gamper, E. M. et al (2013). Psychometric evaluation of the EORTC computerized adaptive test (CAT) fatigue item pool. Quality of Life Research, 22(9), 2443-2454.

 

Singer S, Langendijk J, Yarom N. Assessing and Improving Quality of Life in Patients with Head and Neck Cancer. Am Soc Clin Oncol Educ Book. 2013:230-5. doi: 10.1200

 

Winters, ZE, Balta, V, Thomson, H, Brandberg, Y, Oberguggenberger, A, Sinove, Y, Unukovych, D, Nava, M, Sandelin, K & Johansson, H.  Phase III development of the European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire (QLQ) module for women undergoing breast reconstruction: The EORTC QLQ-BRR26. British Journal of Surgery. 2013

 

Yadegarfar G, Friend L, Jones L, Plum LM, Ardill J, Taal B, Larsson G, Jeziorski K, Kwekkeboom D, Ramage JK and on behalf of the EORTC Quality of Life Group. Validation of the EORTC QLQ-GINET21 questionnaire for assessing quality of life of patients with gastrointestinal neuroendocrine tumours. British Journal of Cancer. Jan 2013.

 

2012

 

Bjelic-Radisic V, Jensen PT, Vlasic KK, Waldenstrom AC, Singer S, Chie W, Nordin A, Greimel E. Quality of life characteristics inpatients with cervical cancer. Eur J Cancer. 2012 Nov;48(16):3009-18. doi: 10.1016/j.ejca.2012.05.011.​

 

Chie WC, Blazeby JM, Hsiao CF, Chiu HC, Poon RT, Mikoshiba N, Al-Kadhimi G, Heaton N, Calara J, Collins P, Caddick K, Costantini A, Vilgrain V, Trinquart L, Chiang C; EORTC Quality of Life Group. International cross-cultural field validation of an European Organization for Research and Treatment of Cancer questionnaire module for patients with primary liver cancer, the European Organization for Research and Treatment of Cancer quality-of-life questionnaire HCC18. Hepatology. 2012 Apr;55(4):1122-9. doi: 10.1002/hep.24798. Epub 2012 Mar 1.

 

Cocks K, King MT, Velikova G, de Castro G Jr, Martyn St-James M, Fayers PM, Brown JM. Evidence-based guidelines for interpreting change scores for the European Organisation for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30. Eur J Cancer. 2012 Jul;48(11):1713-21. doi: 10.1016/j.ejca.2012.02.059. Epub 2012 Mar 12. PubMed PMID: 22418017.

 

Chow, E, Nguyen J, Tseng ZL, Ling-Ming H, Ming-Feng H, Fairchild A, Alysa Vassiliou Vassilios A, Jesus-Garcia R, Alm El-Din Mohamed A., Aswin Forges K, Chie F, Wei-Chu W, BottomleyA; On behalf of the European Organisation for Research Treatment of Cancer; Quality of Life Group. International Field Testing of the Reliability and Validity of the EORTC QLQ-BM22 Module to Assess Health-Related Quality of Life in Patients With Bone Metastases; Cancer, 2012 Mar 1;118(5):1457-65. doi: 10.1002/cncr.26410

 

Hjermstad MJ, Bergenmar M, Fisher SE, Montel S, Nicolatou-Galitis O, Raber-Durlacher J, Singer S, Verdonck-de Leeuw I, Weis J, Yarom N, Herlofson BB. The EORTC QLQ-OH17: a supplementary module to the EORTC QLQ-C30 for assessment of oral health and quality of life in cancer patients. Eur J Cancer. 2012 Sep;48(14):2203-11. doi: 10.1016/j.ejca.2012.04.003. Epub 2012 May 8.

 

Holzner B, Efficace F, Basso U, Johnson CD, Aaronson NK, Arraras JI, Smith AB, Chow E, Oberguggenberger AS, Bottomley A, Steiner H, Incrocci L, Giesinger JM. Cross-cultural development of an EORTC questionnaire to assess health-related quality of life in patients with testicular cancer: the EORTC QLQ-TC26.Qual Life Res. 2012 Mar 10. PMID: 22407356

 

Jonathan R. Rees, Jane M. Blazeby, Peter Fayers, Elizabeth A. Friend, Fenella K.S. Welsh, Timothy G. John and Myrddin Rees. Patient-Reported Outcomes After Hepatic Resection of Colorectal Cancer Metastases. Journal of Clinical Oncology. Apr 2012; 30; 1364-1370

 

Koller M,  Kantzer V, Mear I, Zarzar K, Martin M, Greimel E, Bottomley A, Arnott M, Kuliś D; The ISOQOL TCA-SIG. The process of reconciliation: evaluation of guidelines for translating quality-of-life questionnaires. Expert Review of Pharmacoeconomics & Outcomes Research 2012 Apr;12(2):189-97. doi: 10.1586/erp.11.102

 

Scott NW, Etta JA, Aaronson NK, Bottomley A, Fayers PM, Groenvold M, Koller M, Kuliś D, Marais D, Petersen MA, Sprangers MA. An evaluation of the response category translations of the EORTC QLQ-C30 questionnaire. Qual Life Res. 2012 Oct 2, PMID: 23054491.

 

Velikova G, Coens C, Efficace F, Greimel E, Groenvold M, Johnson C, Singer S, van de Poll F, Young T, Bottomley A. Health – Related Quality of Life in EORTC clinical trials – 30 years of progress from methodological developments to making a real impact on oncology practice. European Journal of Cancer, 2012; 10 (1): 141-149

 

Vivat B, Young T, Efficace F, Sigurdadóttir V, Arraras JI, Åsgeirsdóttir GH, Brédart A,  Costantini A, Kobayashi K, Singer S. EORTC Quality of Life Group. Cross-cultural development of the EORTC QLQ-SWB36: A stand-alone measure of spiritual wellbeing for palliative care patients with cancer. Palliat Med.  2013 27: 457 originally published online 27 July 2012 DOI: 10.1177/0269216312451950

 

Weis J, Arraras JI, Conroy T, Efficace F, Fleissner C, Görög A, Hammerlid E, Holzner B, Jones L, Lanceley A, Singer S, Wirtz M, Flechtner H, Bottomley A. Development of an EORTC quality of life phase III module measuring cancer-related fatigue (EORTC QLQ-FA13). Psychooncology. 2012 May 4. doi: 10.1002/pon.3092

 

2011

 

Arraras JI, Greimel E, Chie WC, Sezer O, Bergenmar M, Costantini A, Young T, Kuljanic K, Velikova G; European Organisation for Research and Treatment of Cancer Quality of Life Group. Information disclosure to cancer patients: EORTC QLQ-INFO25 questionnaire. Expert Rev Pharmacoecon Outcomes Res. 2011 Jun;11(3):281-6. doi: 10.1586/erp.11.29. PubMed PMID: 21671697.

 

Claassens L, van Meerbeeck J, Coens C, Quinten C, Ghislain I, Sloan EK, Wang XS, Velikova G, Bottomley A. Health-related quality of life in non-small-cell lung cancer: an update of a systematic review on methodologic issues in randomized controlled trials. J Clin Oncol. 2011 May 20;29(15):2104-20. doi:10.1200/JCO.2010.32.3683. Epub 2011 Apr 4. Review. PubMed PMID: 21464420; PubMed  Central PMCID: PMC3138547.

 

Cocks K, King MT, Velikova G, Martyn St-James M, Fayers PM, Brown JM. Evidence-based guidelines for determination of sample size and interpretation of  the European Organisation for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30. J Clin Oncol. 2011 Jan 1;29(1):89-96. doi: 10.1200/JCO.2010.28.0107. Epub 2010 Nov 22. Review. PubMed PMID: 21098316.

 

Friend E, Yadegarfar G, Byrne C, Johnson CD, Sezer O, Pucciarelli S, Pereira SP, Chie WC, Banfield A, Ramage JK, EORTC Quality of Life Group. Development of a questionnaire (EORTC module) to measure quality of life in patients with cholangiocarcinoma and gallbladder cancer, the EORTC QLQ-BIL21. British Journal of Cancer. Feb 2011; 104(4):587-92

 

Gundy CM, Fayers PM, Groenvold M, Petersen MA, Scott NW, Sprangers MA, Velikova G, Aaronson NK. Comparing higher order models for the EORTC QLQ-C30. Qual Life Res. 2012 Nov;21(9):1607-17. doi: 10.1007/s11136-011-0082-6. Epub 2011  Dec 21. PubMed PMID: 22187352; PubMed Central PMCID: PMC3472059.

 

Giesinger JM, Aa Petersen M, Groenvold M, Aaronson NK, Arraras JI, Conroy T, Gamper EM, Kemmler G, King MT, Oberguggenberger AS, Velikova G, Young T, Holzner  B; European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC-QLG). Cross-cultural development of an item list for computer-adaptive testing of fatigue in oncological patients. Health Qual Life Outcomes. 2011 Mar 29;9:19. doi: 10.1186/1477-7525-9-19. PubMed PMID: 21447160; PubMed Central PMCID: PMC3078839.

 

Kuliś D, Arnott M, Greimel ER, Bottomley A, Koller M; European Organisation for Research and Treatment of Cancer; Quality of Life Group. Trends in translation requests and arising issues regarding cultural adaptation. Expert Review of Pharmacoeconomics & Outcomes Research 2011 Jun;11(3):307-14. doi: 10.1586/erp.11.27

 

Petersen MA, Groenvold M, Aaronson NK, Chie WC, Conroy T, Costantini A, Fayers P, Helbostad J, Holzner B, Kaasa S, Singer S, Velikova G, Young T. Development of computerized adaptive testing (CAT) for the EORTC QLQ-C30 physical functioning dimension. Qual Life Res. 2011 May;20(4):479-90. doi: 10.1007/s11136-010-9770-x. Epub 2010 Oct 23. PubMed PMID: 20972628.

 

 

2010

 

Arraras JI, Greimel E, Sezer O, Chie WC, Bergenmar M, Costantini A, Young T,  Vlasic KK, Velikova G. An international validation study of the EORTC QLQ-INFO25  questionnaire: an instrument to assess the information given to cancer patients.  Eur J Cancer. 2010 Oct;46(15):2726-38. doi: 10.1016/j.ejca.2010.06.118. Epub 2010 Jul 30. PubMed PMID: 20674333.

 

Halkett G, Aoun S, Hayne D, Lund JA, Gruen A, Villa J, Livi L, Arcangeli S, Velikova G, Spry N; EORTC Quality of Life Group. EORTC radiation proctitis-specific quality of life module - pretesting in four European countries. Radiother Oncol. 2010 Nov;97(2):294-300. doi: 10.1016/j.radonc.2010.04.001. Epub 2010 May 4. PubMed PMID: 20447707.

 

Petersen MA, Groenvold M, Aaronson NK, Chie WC, Conroy T, Costantini A, Fayers P, Helbostad J, Holzner B, Kaasa S, Singer S, Velikova G, Young T; EORTC Quality of Life Group. Development of computerised adaptive testing (CAT) for the EORTC QLQ-C30 dimensions - general approach and initial results for physical functioning. Eur J Cancer. 2010 May;46(8):1352-8. doi: 10.1016/j.ejca.2010.02.011. Epub 2010 Mar 16. PubMed PMID: 20231085.

 

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MA; EORTC Quality of Life Group and the Quality of Life Cross-Cultural Meta-Analysis Group. Differential item functioning (DIF) analyses of health-related quality of life instruments using logistic regression.  Health and Quality of Life Outcomes 2010 Aug 4, 8:81. doi:10.1186/1477-7525-8-81.

 

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MA; EORTC Quality of Life Group; Quality of Life Cross-Cultural Meta-Analysis Group. Interpretation of differential item functioning analyses using external review. Expert Review of Pharmacoeconomics & Outcomes Research. 2010 Jun;10(3):253-8. doi: 10.1586/erp.10.22.

 

Taphoorn MJ, Claassens L, Aaronson NK, Coens C, Mauer M, Osoba D, Stupp R, Mirimanoff RO, van den Bent MJ, Bottomley A; on behalf of the EORTC Quality of Life Group, and Brain Cancer, NCIC and Radiotherapy Groups. An international validation study of the EORTC brain cancer module (EORTC QLQ-BN20) for assessing health-related quality of life and symptoms in brain cancer patients. European Journal of Cancer. 2010 Apr;46(6):1033-40. doi: 10.1016/j.ejca.2010.01.012.

2009

 

Blazeby JM, Fayers P, Conroy T, Sezer O, Ramage J, Rees M on behalf of the European Organization for Research Treatment of Cancer (EORTC) Quality of Life Group. Validation of the European Organization for Research and Treatment of Cancer QLQ-LMC21 questionnaire for assessment of patient-reported outcomes during treatment of colorectal liver metastases. Br J Surg. 96 (3): 291-298, 2009.

 

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MAG on behalf of the EORTC Quality of Life Group and the Quality of Life Cross-Cultural Meta-Analysis Group. A simulation study provided sample size guidance for differential item functioning (DIF) studies using short scales. J Clin Epidemiol 62 (3): 288-295, 2009.

 

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MAG on beholf of the EORTC Quality of Life Group and the Quality of Life Cross-Cultural Meta-Analysis Group. Differential item functioning (DIF) in the EORTC QLQ-C30: a comparison of baseline, on-treatment and off-treatment data. Qual Life Res. 2009 Feb 27.

 

 

2008

 

Van Andel G, Bottomley A, Fossa S, Efficace F, Coens C, Guerif S, Kynaston, H, Gontero P, Thalmann G, Akdas A, D’haese S, Aaronson NK on behalf of the EORTC Genito-Urinary Tract Cancer Group and the EORTC Quality of Life Group. An international field study of the EORTC QLQ-PR25: A questionnaire for assessing the health-related quality of life of patients with prostate cancer. Eur J Cancer 44 (16): 2418-2424, 2008.

 

Cankurtaran ES, Ozalp E, Soygur H, Ozer S, Akbiyik DI, Bottomley A. Understanding the reliability and validity of the EORTC QLQ-C30 in Turkish cancer patients. Eur J Cancer Care 17 (1): 98-104, 2008.

 

Cocks K, King MT, Velikova G, Fayers PM, Brown JM. Quality, interpretation and presentation of European Organisation for Research and Treatment of Cancer quality of life questionnaire core 30 data in randomised controlled trials. EJC 44: 1793–1798, 2008.

 

Pais-Ribeiro J, Pinto C, Santos C. Validation study of the Portuguese Version of the QLQ-C30 V3. Psicologia, Saúde & Doenças 9(1):89-102, 2008.

 

2007

 

Lagergren P, Fayers P, Conroy T, Stein HJ, Sezer O, Hardwick R, Hammerlid E, Bottomley A, Van Cutsem E, Blazeby JM; European Organisation for Research Treatment of Cancer Gastrointestinal and Quality of Life Groups. Clinical and psychometric validation of a questionnaire module, the EORTC QLQ-OG25, to assess health-related quality of life in patients with cancer of the esophagus, the esophago-gastric junction and the stomach. Eur J Cancer 43 (14): 2066-2073, 2007.

 

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Koller M, Petersen MA, Sprangers MA; on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. The use of differential item functioning analyses to identify cultural differences in responses to the EORTC QLQ-C30. Qual Life Res 16: 115-129, 2007.

 

Cocks K, Cohen D, Wisløff F, Sezer O, Lee S, Hippe E, Gimsing P, Turesson I, Hajek R, Smith A, Graham L, Phillips A, Stead M, Velikova G, Brown J; EORTC Quality of Life Group. An international field study of the reliability and validity of a disease-specific questionnaire module (the QLQ-MY20) in assessing the quality of life of patients with multiple myeloma. Eur J Cancer. 2007 Jul;43(11):1670-8. Epub 2007 Jun 15.

 

Huang CC, Lien HH, Sung YC, Liu HT, Chie WC. Quality of life of patients with gastric cancer in Taiwan: Validation and clinical application of the Taiwan Chinese version of the EORTC QLQ-C30 and EORTC QLQSTO22. Psycho-Oncology 16: 945–949, 2007.

 

Velikova G, Weis J, Hjermstad MJ, Kopp M, Morris P, Watson M, Sezer O; EORTC Quality of Life Group. The EORTC QLQ-HDC29: A supplementary module assessing the quality of life during and after high-dose chemotherapy and stem cell transplantation. Eur J. Cancer 43 (1): 87-94, 2007.

 

Brédart A, Coens C, Aaronson NK, Chie W-C, Efficace F, Conroy T, Blazeby JM, Hammerlid E, Costantini M, Joly F, Schraub S, Sezer O, Arraras JI, Rodary C, Costantini A, Mehlitz M, Razavi D, Bottomley A on behalf of the EORTC Quality of Life Department. Determinant of patient satisfaction in oncology settings from European and Asian countries: Preliminary results based on the EORTC IN-PATSAT32 questionnaire. Eur J Cancer 43 (2): 323-330, 2007.

 

2006

 

Davies AHG, Larsson G, Ardill J et al. on behalf of the EORTC Quality of Life Group. Development of a disease-specific quality of life questionnaire module for patients with gastrointestinal neuroendocrine tumours. Eur J Cancer 42: 477-484, 2006.

 

Scott NW, Fayers PM, Bottomley A et al. on behalf of the EORTC Quality of Life Cross-Cultural Meta-Analysis Group. Comparing translations of the EORTC QLQ-C30 using differential item functioning analyses. Qual Life Res 15 (6): 1103-1115, 2006.

 

Greimel E, Kuljanic Vlasic K, Waldenstrom AC et al. on behalf of the EORTC Quality of Life Group. The European Organization for Research and Treatment of Cancer (EORTC) Quality-of-Life questionnaire cervical cancer module - EORTC QLQ-CX24. Cancer 107 (8): 1812-1822, 2006.

 

Groenvold M, Petersen MA, Aaronson NK, et al. for the EORTC Quality of Life Group. The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care. Eur J Cancer 42 (1): 55-64, 2006.

 

 

2005

 

Brédart A, Bottomley A, Blazeby JM et al. and on behalf of the EORTC Quality of Life Group and Quality of Life Unit. An international prospective study of the EORTC cancer in-patient satisfaction with care measure (EORTC IN-PATSAT32). Eur J Cancer 41 (14): 2120-2131, 2005.

 

Bottomley A, Flechtner H, Efficaca F et al. on behalf of the EORTC Data Center and Quality of Life Group. Health related quality of life outcomes in cancer trials. Eur J Cancer 41 (12): 1697-1709, 2005.

 

Postma TJ, Aaronson NK, Heimans JJ, et al. on behalf of the EORTC Quality of Life Group. The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: The QLQ-CIPN20. Eur J Cancer 41: 1135-1139, 2005.

 

 

2004

 

Arraras JI, Wright S, Greimel E, et al. Development of a questionnaire to evaluate the information needs of cancer patients: The EORTC questionnaire. Patient Educ Couns 54: 235-241, 2004.

 

Bjorner JB, Petersen MA, Groenvold M et al. for the EORTC Quality of Life Group. Use of item response theory to develop a shortened version of the EORTC QLQ-C30 emotional function scale. Quality of Life Research 13: 1683-1697, 2004.

 

Blazeby JM, Currie E, Zee BCY et al. on behalf of the EORTC Quality of Life Group. Development of a questionnaire module to supplement the EORTC QLQ-C30 to assess quality of life in patients with hepatocellular carcinoma, the EORTC QLQ-HCC18. Eur J Cancer. 40 (16): 2439-2444, 2004.

 

Blazeby JM, Conroy T, Bottomley A et al. on behalf of the EORTC Gastrointestinal and Quality of Life Group. Clinical and psychometric validation of questionnaire module, the EORTC QLQ-STO22, to assess quality of life in patients with gastric cancer. Eur J Cancer 40: 2260-2268, 2004.

 

Brandberg Y, Damato B, Kivela T, et al. The EORTC ophthalmic oncology quality of life questionnaire module (EORTC QLQ-OPT30). Development and pre-testing (Phase I-III). EORTC Ophthalmic Oncology Task Force; EORTC Quality of Life Group. Eye 18: 283-289, 2004.

 

Chie WC, Yang CH, Hsu C, et al. Quality of life of lung cancer patients: Validation of the Taiwan Chinese version of the EORTC QLQ-C30 and QLQ-LC13. Quality of Life Research 13: 257-262, 2004.

 

 

2003

 

Blazeby JM, Conroy T, Hammerlid E, et al. on behalf of the EORTC Gastrointestinal and Quality of Life Groups. Clinical and psychometric validation of an EORTC questionnaire module, the EORTC QLQ-OES18, to assess quality of life in patients with oesophageal cancer. Eur J Cancer 39: 1384-1394, 2003.

 

Efficace F, Bottomley A, Osoba D, et al. Beyond the development of Health-Related Quality of Life (HRQOL) Measures: A Checklist for evaluation HRQOL Outcomes in Cancer Clinical Trials- Does HRQOL evaluation in prostate cancer research inform clinical decision making. J. Clin. Oncol. 21 (18): 3502-3511, 2003.

 

Greimel E, Bottomley A, Cull A et al. on behalf of the EORTC Quality of Life Group and the Quality of Life Unit. An international field study of the reliability and validity of a disease-specific questionnaire module (the QLQ-OV28) in assessing the quality of life of patients with ovarian cancer. Eur J Cancer 39: 1402-1408, 2003.

 

Kavadas V, Blazeby JM, Conroy T, et al. on behalf of the EORTC Quality of Life Group. Development of an EORTC disease-specific quality of life questionnaire for use in patients with liver metastates from colorectal cancer. Eur J Cancer 39: 1259-1263, 2003.

 

Petersen MA, Groenvold M, Bjorner JB et al. Use of differential item functioning analysis to assess the equivalence of translations of a questionnaire. European Organisation for Research and Treatment of Cancer Quality of Life Group. Qual Life Res 12: 373-385, 2003.

 

Ramage JK, Davies AH on behalf of the EORTC Quality of Life Group. Measurement of quality of life in carcinoid/neuroendocrine tumours. Endocr Relat Cancer 10: 483-486, 2003.

 

Bottomley A, Vanvoorden V, Flechtner H, Therasse P; on behalf of the EORTC Quality of Life Group and the EORTC Data Center. The challenges and achievements involved in implementing Quality of Life research in cancer clinical trials. Eur J Cancer. 2003 Feb; 39(3): 275-285.

 

2002

 

Arraras JI, Arias F, Tejedor M,  Pruja E, Marcos M, Martinez E, Valerdi J. The EORTC QLQ-C30 (version 3.0) Quality of Life questionnaire: Validation study for Spain with head and neck cancer patients. Psychooncology. 2002 May-Jun;11 (3): 249-256.

 

Bottomley A, Vachalec S, Bjordal K, Blazeby J, Flechtner H, Ruskart P; on behalf of the EORTC Quality of Life Group. The development and utilisation of the European Organisation for Research and Treatment of Cancer - Quality-of-Life Group item bank. Eur J Cancer. 2002 Aug;38 (12), 1611-1614.

 

Fayers P, Bottomley A; on behalf of the EORTC Quality of Life Group and of the Quality of Life Unit. Quality of life research within the EORTC - the EORTC QLQ-C30. Eur J Cancer. 2002 Mar. 38 (Suppl. 4): S125-S133.

 

2001

 

Vickery CW, Blazeby JM, Conroy T, Arraras J, Sezer O, Koller M, Rosemeyer D, Johnson CD, Alderson D; EORTC Quality of Life Group.  Development of an EORTC disease-specific quality of life module for use in patients with gastric cancer. Eur J Cancer. 2001 May;37(8): 966-971.

 

Cull A. Howat S, Greimel E, Waldenstorm AC, arraras J, Kudelka A, Chauvenet L, Gould A; EORTC Quality of Life Group. Development of a European Organization for Research and Treatment of Cancer questionnaire module to assess the quality of life of ovarian cancer patients in clinical trials: A progress report. Eur J Cancer. 2001 Jan; 37(1): 47-53.

 

2000

 

Bjordal K, De Graeff A, Fayers PM, Hammerlid E, van Pottelsberghe, Curran D, Ahlner-Elmgvist M, Maher EJ, Meyza JW, Brédart A, Söderholm AL, Arraras JJ, Feine JS, Abendstein H, Morton RP, Pignon T, Huguenin P, Bottomley A, Kaasa S. on behalf of the EORTC Quality of Life Group. A 12 country field study of the EORTC QLQ-C30 (version 3.0) and the head and neck cancer specific module (EORTC QLQ-H&N35) in head & neck patients. Eur J Cancer. 2000 Sep;36(14): 1796-1807.

 

De Haes J, Curran D, Young T, Bottomley A, Flechtner H, Aaronson NK, Blazeby J, Bjordal K, Brandberg Y,  Greimel E, Maher J, Sprangers MA, Cull A, for the EORTC Quality of Life Group. Quality of life evaluation in oncological clinical trials - The EORTC model. Eur J Cancer. 2000 Jan;36 (7): 821-825.

 

1999

 

Bjordal K, Hammerlid E, Ahlner-Elmqvist M, de Graeff A, Boysen M, Evensen JF, Biörklund A, de Leeuw JR, Fayers PM, Jannert M, Westin T, Kaasa S. for the EORTC Quality of Life Group. Quality of life in head and neck cancer patients: Validation of the European organization for research and treatment of cancer quality of life questionnaire-H&N35. J Clin Oncol. 1999 Mar;17(3): 1008-1019.

 

Fitzsimmons D, Johnson CD, George S, Payne S, Sandberg AA, Bassi C, Beger HG, Birk D, Büchler MW, Dervenis C, Fernandez Cruz L, Friess H, Hrahm AL, Jeekel J, Laugier R, Meyer D, Singer MW, Tihanyi T. Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer. Eur J Cancer. 1999 Jun; 35(6): 939-941.

 

Stead ML, Brown JM, Velikova G, Kaasa S, Wisloff F, Child JA, Hippe E, Hjorth M, Sezer O, Selby P. Development of an EORTC questionnaire module to be used in health-related quality-of-life assessment for patients with multiple myeloma. European organization for research and treatment of cancer study group on quality of life. Br J Haematol. 1999 Mar; 104(3): 605-611.

 

Sprangers MAG, te Velde A, Aaronson NK. The construction and testing of the EORTC colorectal cancer-specific quality of life questionnaire module (QLQ-CR38). Eur J Cancer. 1999 Feb; 35(2): 238-247.

 

1998

 

Kobayashi K, Takeda F, Teramukai S, Gotoh I, Sakai H, Yoneda S, Noquchi Y, Ogasawara H, Yoshida K. A cross-validation of the European Organization for Research and Treatment of Cancer QLQ-C30 (EORTC QLQ-C30) for japanese with lung cancer. Eur J Cancer. 1998 May. 34(6): 810-815.

 

Sprangers MAG, Cull A, Groenvold M, et al. The European Organization for Research and Treatment of Cancer approach to developing questionnaire modules: An update and overview. EORTC Quality of Life Study Group. Qual Life Res. 1998 May; 7(4): 291-300.

 

1996

 

Sprangers MA, Groenvold M, Arraras JI, Franklin J, te Velde A, Muller M, Franzini L, Williams A, de Haes HC, Hopwood P, Cull A, Aaronson NK. The European Organisation for Research and Treatment of Cancer: Breast Cancer Specific Quality of Life Questionnaire Module: First results from a three-country field study. J Clin Oncol. 1996 Oct; 14(10): 2756-2768.

 

Osoba D, Aaronson NK, Muller M, Sneeuw K, Hsu MA, Yung WK, Brada M, Newlands E. The development and psychometric validation of a brain cancer quality of life questionnaire for use in combination with general cancer specific questionnaires. Qual Life Res. 1996 Feb;5(1), 139-150.

 

Watson M, Zittoun R, Hall E, Solbu G, Wheatley K. A modular questionnaire for the assessment of long term quality of life in leukaemia patients: The MRC/EORTC QLQ-LEU. Qual Life Res. 1996 Feb; 5(1): 15-19.

 

Aaronson NK, Cull A, Kaasa S, et al. for the EORTC Study Group on Quality of Life. Modular approach to Quality of Life assessment in oncology: An update.  In: Qual Life Pharmacoecon Clin Trials. 2nd edition (B. Spilker, ed). Lippincott - Raven Publishers, Philadelphia, 1996, pp 179-189.

 

 

1995

 

Kaasa S, Bjordal K, Aaronson NK, et al. and the EORTC Study Group on Quality of Life. The EORTC Core Quality of Life Questionnaire (QLQ-C30): Validity and reliability when analyzed with patients treated with palliative radiotherapy. Eur. J. Cancer. 1995 Dec;31A (13-14): 2260-2263.

 

Hjermstad MJ, Fossa SD, Bjordal K,  Kaasa S. Test/retest study of the European Organization for Research and Treatment of Cancer Core Quality-of-Life Questionnaire. J. Clin. Oncol. 1995 May;13(5): 1249-1254.

 

1994

 

Bergman B, Aaronson NK, Ahmedzai S, Kaasa S, Sullivan M. The EORTC QLQ-LC13: a modular supplement to the EORTC Core Quality of Life Questionnaire (QLQ-C30) for use in lung cancer clinical trials. EORTC Study Group on Quality of Life. Eur J Cancer. 1994;30A(5):635-42.

 

1993

 

Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, Filiberti A, Flechtner H, Fleishman SB, de Haes JC, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: A quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993 Mar 3; 85(5): 365-376.

 

Bjordal K, Kaasa S, Ahlner M, et al. Development of a head and neck cancer-specific module for use with the EORTC core quality of life questionnaire (EORTC QLQ-C30). Qual Life Res. 1993; 2: 72.

 

Cull A, on behalf of the EORTC Quality of Life Study Group. Organization and Achievement of the EORTC Quality of Life Study Group. Qual Life Res. 1993; 2: 63.

 

Sprangers MAG, Cull A, Bjordal K et al. The European Organization for Research and Treatment of Cancer Approach Quality of Life Assessment: Guidelines for Developing Questionnaire Modules. Qual Life Res. 1993 Aug; 2: 287-295.

 

Ringdal GI, Ringdal K. Testing the EORTC Quality of Life Questionnaire on cancer patients with heterogeneous diagnoses. Qual Life Res. 1993 Apr; 2: 129-140.

 

Sprangers MAG, Cull A; on behalf of the EORTC Quality of Life Study Group. A modular approach to QOL assessment - lines for questionnaire development. Qual of Life Res. 1993; 2: 72.

 

1992

 

Bjordal K, Kaasa S. Psychometric validation of the EORTC core quality of life questionnaire , 30 item version and a diagnosis specific module for head and neck cancer patients. Acta Oncol. 1992; 31(3): 311-321.

 

1991

 

Aaronson NK, Ahmedzai S, Bullinger M, et al. for the EORTC Study Group on Quality of Life. The EORTC Core Quality of Life Questionnaire: Interim results of an international field study. In: Effect of Cancer on Quality of Life (D. Osoba, ed.), CRC Press Inc., Boca Raton, 1991, pp. 185-203.