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Quality of Life Group Meeting: 14 - 15 - 16 September 2011,
Innsbruck, Austria
- Chairmen's welcome and introduction by Galina Velikova
- EORTC Symptom- Based Questionnaires by Colin Johnson
- Electronic Data collection project update the EORTC CHES project by Bernhard Holzner
- Computer Adaptive Testing (CAT) Project by M. Groenvold and M. Petersen
- Support in development of the new modules by the QLD by Francesca Martinelli
- Quality of Life of high- grade glioma patients and their proxies during the end-of-life phase by Jaap Reijneveld
- QOL and cost utility studies: conceptual similarities and differences by Georg Kemmler
- Translation Commitee Report by Dagmara Kulis
- International study to develop a Questionnaire Module to measure Quality of Life for melanoma patients by Julie Winstanley
Quality of Life Group Meeting: 28 February - 1st March 2011,
Brussels, Belgium
- Chairmen's welcome and introduction by Galina Velikova (197 kb)
- Survivorship research in EORTC studies: an example from prostate and testis trials by Neil Aaronson and Susanne Osanto (3.85mb)
- Overview of Quality of Life Department by Andrew Bottomley (3.50 mb)
- Core clinical and patient outcome sets in clinical trials by Jane Blazeby (4.48 mb)
- Short quality of life and symptom control in advanced head & neck cancer patients by Van Herpen at al. (1.04 mb)
- Neoadjuvant chemotheraphy or primary surgery in ovarian cancer . The value of QoL outcomes by Ignace Vergote and Eva Greimel (830kb)
- Computer Adaptive Testing (CAT) by Marten Petersen & Mogens Groenvold (133 kb)
- IT Solutions for Questionnaire Administration by Bernhard Holzner, Johannes Giesinger & Gerhard Rumpold (4.32 mb)
- Report from Module Development Committee by Colin Johnson, Ken Cornelissen & Sheila Sanderson (90.5 kb)
- Neoadjuvant chemotherapy in Stage IIIc and IV ovarian carcinoma by Ignace Vergote ( 1.01 mb)
Quality of Life Group Meeting: 23 - 24 September 2010, Leipzig, Germany
- Development
of an EORTC communication module by Dr. Juan Ignacio Arraras pdf
(9 kb)
- Update on the validation of the HCC18 module by Dr. Wei-Chu Chie pdf (175
kb)
- Update on the Elderly module (ELD15) Phase IV by Dr. Anne-Sophie Darlington pdf
(182 kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(106 kb)
- Minimal important differences (MID)
for individual subjects and groups of subjects by Dr. Georg Kemmler et al pdf
(365 kb)
- Minimal Clinically Important
Differences for the EORTC QLQ-C30
and QLQ-BN20 by Mr. John Maringwa pdf
(930 kb)
- Exploring internal relationships
among EORTC QLQ-C30 indicators from EORTC clinical trials by Ms Francesca Martinelli pdf
(1,789 kb)
- Update of the CAT Project - The
EORTC QLQ-C30 interactive: Computerized adaptive testing by Morten Petersen and Dr. Mogens Groenvold pdf (409
kb)
- Can patient self-reporting of symptoms complement clinician ratings in estimating cancer survival? by Chantal Quinten pdf (827 kb)
- Update
on the Spiritual Wellbeing module by Mrs Teresa Young pdf
(421 kb)
- Update
on the Melanoma module by Dr. Julie Winstanley pdf
(1,146 kb)
- Pictures of the QLG meeting in Leipzig are available here.
Quality of Life Group Meeting: 8 - 9 April 2010, Rome, Italy
- Introduction by the Quality of Life Group Chair, Prof. Galina Velikova pdf (102 kb)
- Update
on the activities of the Quality of Life Department by Dr.
Andrew Bottomley pdf (2,859 kb)
- Development of an EORTC module for Chronic Myeloid Leukemia by Dr. Fabio Efficace pdf (1,826 kb)
- Update
on the Endometrial cancer module by Dr. Eva Greimel pdf
(130 kb)
- Higher order component scores for the QLQ-C30 by Dr. Chad Gundy pdf
(427 kb)
- Update of the CAT Project - The
EORTC QLQ-C30 interactive: Computerized adaptive testing by Morten Petersen and Dr. Mogens Groenvold pdf (584
kb)
- Update
of the QLQ-BM22 bone metastases module and the QLQ-BN20 brain module by Dr. Lori Holden pdf (857
kb)
- Development
of the PC-software Computer based Health Evaluation System (CHES) by
Dr. Bernhard Holzner pdf (1,613
kb)
- Update
of the QLD Translations Unit: Plenary session by Dagmara Kulis pdf (1,183
kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(104 kb)
- Development of an EORTC Quality of Life module for Cachexia/nutrition by Mr. Colin Johnson pdf
(13 kb)
- Update on the Elderly module (ELD15) Phase IV by Mr. Colin Johnson pdf
(47 kb)
- Update
on the EORTC Head and Neck (H&N35) module by Susanne Singer pdf
(69 kb)
- Update on the breast reconstruction module by Helen Thomson pdf (69 kb)
- Long term survivorship in prostate and testicular cancer by Dr. Marieke van Leeuwen pdf (2,464 kb)
- Development
of an EORTC quality of life module to assess fatigue by Dr. Joachim
Weis pdf
(230 kb)
- Update
on the Melanoma module by Dr. Julie Winstanley pdf
(491 kb)
Quality of Life Group Meeting: 24 - 25 September 2009, Pamplona, Spain
- Spanish experience in QOL studies by Dr. Juan Ignacio Ararras pdf
(1,745 kb)
- Update
of the QLQ-BM22 bone metastases module and the QLQ-BN20 brain module by Dr. Brita Danielson and Dr. Edward Chow pdf (807
kb)
- Higher order component scores for the QLQ-C30 by Dr. Chad Gundy pdf
(431 kb)
- Update
on the Oral Health module by Marianne Hjermstad pdf
(30 kb)
- Update of the CAT Project - The
EORTC QLQ-C30 interactive: Computerized adaptive testing by Morten Petersen and Dr. Mogens Groenvold pdf (682
kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(69 kb)
- Update
on the Radiation Proctitis module by Dr. Nigel Spry pdf
(951 kb)
- Update
on the Melanoma module by Dr. Julie Winstanley pdf
(1,196 kb)
Quality of Life Group meeting: 19 - 20 March 2009, Brussels, Belgium
- Cancer survivorship study by Prof. Neil Aaronson pdf
(102 kb)
- QOL results from EORTC 18991 in Melanoma patients by Dr. Andrew Bottomley pdf (796 kb)
- Update on the validation of the HCC18 module by Dr. Wei-Chu Chie pdf (128
kb)
- Update
of the QLQ-BM22 bone metastases module by Dr. Edward Chow pdf (358
kb)
- Update
on the validation of the Brain module (QLQ-BN20) by Dr. Brita Danielson pdf
(354 kb)
- Update
of the Translations Committee: Parallel session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (572
kb)
- Update
of the Translations Committee: Plenary session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (1,306
kb)
- Update of the CAT Project - The
EORTC QLQ-C30 interactive: Computerized adaptive testing by Dr. Mogens Groenvold and Morten Petersen pdf (514
kb)
- Higher order component scores for the QLQ-C30 by Dr. Chad Gundy pdf
(440 kb)
- Update
on the Oral Health module by Marianne Hjermstad pdf
(133 kb)
- An EORTC vulva cancer module by Pernille Jensen pdf
(212 kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(58 kb)
- Development
of an EORTC quality of life module to assess fatigue by Dr. Joachim
Weis pdf
(157 kb)
Quality of Life Group meeting: 18 - 19 September 2008, Liverpool, UK
- Development
of an EORTC information module by Dr. Juan Ignacio Arraras pdf
(65 kb)
- Update
on the activities of the Quality of Life Department by Dr.
Andrew Bottomley pdf (448 kb)
- Update
of the Translations Committee: Parallel session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (168
kb)
- Update
of the Translations Committee: Plenary session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (107
kb)
- Update
on the EORTC Bone metastases module (QLQ-BM22) and the validation of the Brain module (QLQ-BN20) by Dr.
Hird pdf
(679 kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(58 kb)
- Development
of an EORTC Elderly module by Mr. Colin Johnson pdf
(120 kb)
- The
EORTC QLQ-C30 interactive: Computerized adaptive testing (CAT project)
by Dr. Morten Petersen pdf (483
kb)
- Cross-Cultural
Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf
(79 kb)
- Update
on the EORTC Head and Neck (H&N35) module by Susanne Singer pdf
(33 kb)
Quality of Life Group meeting: 24 - 25 April 2008, Stockholm, Sweden
- Development
of an EORTC information module by Dr. Juan Ignacio Arraras pdf
(43 kb)
- Update
on the activities of the Quality of Life Department by Dr.
Andrew Bottomley pdf (187 kb)
- Update
of the Translations Committee: Parallel session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (515
kb)
- Update
of the Translations Committee: Plenary session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (442
kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(53 kb)
- Development
of an EORTC quality of life module for cholangiocarcinoma: update by
Barbara King pdf (71 kb)
- Development
of an EORTC questionnaire for Patients with Neuro Endocrine Tumours
by Barbara King pdf (153 kb)
- The
EORTC QLQ-C30 interactive: Computerized adaptive testing (CAT project)
by Dr. Morten Petersen pdf (260
kb)
- Cross-Cultural
Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf
(88 kb)
- Development
of an EORTC quality of life module to assess fatigue by Dr. Joachim
Weis pdf
(139 kb)
Quality of Life Group meeting: 22 - 23 November 2007, Belfast, Northern Ireland, UK
- Update
on the activities of the Quality of Life Department by
Dr. Andrew Bottomley pdf
(273 kb)
- Update
of the Translations Committee: Parallel session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (887
kb)
- Update
of the Translations Committee: Plenary session by Dr. Linda Dewolf
and Prof. Michael Koller pdf (669
kb)
- Development
of the EORTC Bone metastases module by Dr. Hird pdf
(1,19 mb)
- Update
on the EORTC Bone metastases module and proposed shortening by Dr.
Hird pdf
(259 kb)
- Validation
of the EORTC Brain Cancer module QLQ-BN20 by Dr. Hird pdf
(309 kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(50 kb)
- Development
of an EORTC quality of life module for cholangiocarcinoma: update by
Barbara King pdf (77 kb)
- Development
of an EORTC questionnaire for Patients with Neuro Endocrine Tumours
by Barbara King pdf (143
kb)
- Development
of the EORTC Endometrial cancer module by Dr.
Andy Nordin pdf
(801 kb)
- The
EORTC QLQ-C30 interactive: Computerized adaptive testing (CAT project)
by Dr. Morten Petersen pdf (328
kb)
- Cross-Cultural
Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf
(87 kb)
- Development
of an EORTC quality of life module to assess fatigue by Dr. Joachim Weis pdf
(280 kb)
Quality of Life Group meeting: 9 - 10 March 2007, Brussels, Belgium
- Patient
reported outcomes assessment in international cancer clinical trials:
The EORTC experience by Prof. Neil Aaronson and Dr. Andrew Bottomley pdf
(195 kb)
- Development
of an EORTC information module by Dr. Juan Ignacio Arraras pdf
(94 kb)
- Update
on the activities of the Quality of Life Unit by Dr. Andrew
Bottomley pdf
(289 kb)
- Update
of the Translations Committee: Parallel session by Dr. Linda
Dewolf and Prof. Michael Koller pdf
(51 kb)
- Update
of the Translations Committee: Plenary session
by Dr. Linda Dewolf and Prof. Michael Koller pdf
(55 kb)
- Development
of an EORTC quality of life module for cholangiocarcinoma: update by
Liz Friend pdf (114 kb)
- Development
of an EORTC questionnaire for Patients with Neuro Endocrine Tumours
by Liz Friend pdf (23 kb)
- Development
of the PC-software Computer based Health Evaluation System (CHES) by
Dr. Bernhard Holzner pdf (365
kb)
- Report
from the Module Development Committee by Mr. Colin Johnson pdf
(91 kb)
- The
EORTC QLQ-C30 interactive: Computerized adaptive testing (CAT project)
by Dr. Morten Petersen pdf (284
kb)
- Cross-Cultural
Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf
(88 kb)
- Development
of an EORTC quality of life module to assess fatigue by Dr. Joachim
Weis pdf
(117 kb)
Quality of Life Group meeting: 23 - 24 November 2006, Southampton, UK
- Development of an EORTC information module by Dr. Juan Ignacio Arraras pdf (148 kb)
- Update on the activities of the Quality of Life Unit by Dr. Andrew Bottomley pdf (156 kb)
- Development of a bone metastases module to accompany the EORTC QLQ-C30 for future clinical trials in patients with bone metastases by Dr. Edward Chow pdf (484 kb); Short presentation pdf (20 kb)
- The use of a translation memory application to facilitate the translation process by Dr. Linda Dewolf pdf (804 kb)
- Update
of the Translations Committee: translation progress by Dr. Linda Dewolf
and Prof. Michael Koller pdf
(376 kb)
- Development of an EORTC questionnaire for Patients with Neuro Endocrine Tumours by Liz Friend pdf (24 kb)
- Development of an EORTC quality of life module for cholangiocarcinoma: update by Liz Friend pdf (140 kb)
- Development of an EORTC quality of life module for patients with liver metastases from colorectal cancer update by Liz Friend pdf (416 kb)
- Development of an EORTC quality of life module for elderly cancer patients by Colin Johnson pdf (72 kb)
- Report on the Translation and Cultural Adaptation Special Interest Group within ISOQOL by Dr. Michael Koller pdf (332 kb)
- The EORTC QLQ-C30 interactive: Computerized adaptive testing (CAT project) by Dr. Morten Petersen pdf (236 kb)
- Cross-Cultural Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf (96 kb)
- Report from the Module Development Committee by Dr. Galina Velikova pdf (88 kb)
- Development of an EORTC quality of life module to assess fatigue by Dr. Joachim Weis pdf (44 kb)
Quality of Life Group 25th Anniversary meeting: 4 - 5 May 2006, Paris, France
- Development of an EORTC information module by Dr. Juan Ignacio Arraras pdf (20 kb)
- Update on the activities of the Quality of Life Unit by Dr. Andrew Bottomley pdf (32 kb)
- Development of a bone metastases module to accompany the EORTC QLQ-C30 for future clinical trials in patients with bone metastases by Dr. Edward Chow pdf (772 kb)
- Development of an EORTC questionnaire for Patients with Neuro Endocrine Tumours by Liz Friend: pdf (32 kb)
- Development of an EORTC quality of life module for cholangiocarcinoma: update by Liz Friend: pdf (92 kb)
- Development of an EORTC quality of life module for patients with liver metastases from colorectal cancer update by Liz Friend pdf (76 kb)
- Development of the PC-software Computer based Health Evaluation System (CHES) by Dr. Bernhard Holzner pdf (144 kb)
- Relationship between Quality of Life and Circadian rest/activity rhythm in cancer patients by Dr. Pasquale Innominato pdf (1.9 mb)
- Cross-Cultural Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf (100 kb)
- Report from the Module Development Committee by Dr. Galina Velikova pdf (60 kb)
- Development of an EORTC quality of life module to assess fatigue by Dr. Joachim Weis pdf (164 kb)
Symposium presentations:
- Programme and photo slideshow pdf (2.9 mb)
- EORTC QLG - 25 Years - The history by Dr. Henning Flechtner pdf (2.0 mb)
- Looking back with a smile by Dr. Jan Bernheim pdf (1.9 mb)
More data on this subject has been published as: Jan L. Bernheim, Peter Theuns, Mehrdad Mazaheri, Joeri Hofmans, Herbert Fliege, Matthias Rose. The potential of Anamnestic Comparative Self Assessment (ACSA) to reduce bias in the measurement of Subjective Well-Being. J. of Happiness Studies 7: 227-250, 2006 Springer press; - Getting
the 'best' out of supportive care in cancer: contribution of the EORTC QOL
measures by Dr. Sam Ahmedzai pdf (2.4
mb)
- Guidelines and beyond by Dr. Ann Smyth pdf (1.3 mb)
- How useful is validation? by Dr. Peter Fayers pdf (412 kb)
- The role of HRQL in surgical decision-making in gastrointestinal cancer by Dr. Jane Blazeby pdf (424 kb)
- Quality of Life Unit: Past, present and future by Dr. Andrew Bottomley pdf (2.1 mb)
- Whither Goeth HRQOL Measurement; The Tail Still Waggeth by Dr. David Osoba pdf (748 kb)
- Pictures of the QLG Anniversary meeting in Paris are available here
Quality of Life Group meeting: 24 - 25 November 2005, Copenhagen, Denmark
- Development of an EORTC quality of life module for cholangiocarcinoma: update by Dr. Abigail Banfield pdf (120 kb)
- Update on the activities of the Quality of Life Unit by Dr. Andrew Bottomley pdf (36 kb)
- QoL analyses of clinical trials: some solution to your problems by Corneel Coens pdf (64 kb)
- Development of an EORTC questionnaire for Patients with Neuro Endocrine Tumours by Liz Friend pdf (28 kb)
- The cervical cancer module EORTC QLQ-CX by Dr. Eva Greimel pdf (60 kb)
- The EORTC QLQ-C30 interactive: Computerized adaptive testing (CAT project) by Dr. Mogens Groenvold pdf (52 kb)
- Cross-Cultural Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf (116 kb)
- Report from the Module Development Committee by Dr. Galina Velikova pdf (60 kb)
- Development of the Fatigue Module (EORTC FA25; FAR15) by Prof. Joachim Weis pdf (52 kb)
Quality of Life Group meeting: 16 - 18 March 2005, Brussels, Belgium
- Development of an EORTC quality of life module for cholangiocarcinoma: update by Dr. Abigail Banfield pdf (92 kb)
- Quality of life in clinical trials in GI cancer by Dr. Jane Blazeby pdf (204 kb)
- Update on the activities of the Quality of Life Unit by Dr. Andrew Bottomley pdf (36 kb)
- Is baseline quality of life a prognostic factor? by Dr. Fabio Efficace pdf (196 kb)
- Development of an EORTC questionnaire for Patients with Neuro Endocrine Tumours by Liz Friend pdf (20 kb)
- The cervical cancer module EORTC QLQ-CX by Dr. Eva Greimel pdf (80 kb)
- Cross-Cultural Analysis of the EORTC QLQ-C30 (CCA project) by Mr Neil Scott pdf (172 kb)
- Report from the Module Development Committee by Dr. Galina Velikova pdf (40 kb)
- Report
from the Translations Committee by Ms Karen West and Prof. Michael Koller pdf
(140 kb)
- Spiritual Wellbeing Module EORTC SWB-40 by Ms Teresa Young pdf (84 kb)
- Nasopharyngeal Carcinoma Module by Mr Benny Zee pdf (496 kb)
Quality of Life Group meeting: 18 - 19 November 2004, Freiburg, Germany
- Development of an EORTC quality of life module for cholangiocarcinoma by Dr. John Ramage pdf (128 kb)
- Development of an EORTC questionnaire for patients with GI-related Neuroendocrine tumours by Dr. John Ramage pdf (456 kb)
- The cervical cancer module EORTC QLQ-CX by Dr. Eva Greimel pdf (68 kb)
- Report from the Module Development Committee by Dr. Galina Velikova pdf (60 kb)
Quality of Life Group meeting: 23 - 24 April 2004, Brussels, Belgium
- Functions and Research within the Quality of Life Unit by Dr. Andrew Bottomley pdf (328 kb)
- QOL
in clinical practice by Dr. Jane Blazeby pdf
(16 kb)
- Measuring quality of life in routine practice improves communication and patient well-being by Dr. Galina Velikova pdf (492 kb)
- QOL
in Clinical Practice by Prof. Neil Aaronson pdf
(44 kb)
- Past, Present and Future of the QLQ-C30 by Prof. Neil Aaronson pdf (76 kb)
- QLG History by Dr Henning Flechtner: pdf (5.3 mb)
- Report from the Translations Committee by Dr. Michael Koller and Karen West pdf (80 kb)
- Translations
Committee session by Karen West and Prof. Michael Koller pdf
(36 kb)
- Ovarian Module (OV28) Field Study Results (15982) by Dr. Eva Greimel pdf (84 kb)
- Patient Satisfaction Module Field Study (15012) by Dr. Anne Bredart pdf (36 kb)
- Prostate Module Field Study (15011) by Prof. Neil Aaronson and Dr. George van Andel pdf (44 kb)